Saturday, 28 February 2015

Happy New Year!

Hi there.

First, have a listen to this beautyful piece of music, that I am listening to a lot these days:
https://www.youtube.com/watch?v=nUcX1w-aAro

I've been wanting to wish you all a happy new year, guess it's a little late for that now but here goes anyway, I wrote it around new year but never got to publish it.

Happy New Year! We all know that life is mixed and that it can't all be good but I do wish you will all have a year with lots of love, luck and good times. I hope your conditions will behave and not give you too much grief. Newbies; know that by this time next year things will be different and you will be in a better place.

2014 was a big year for me. After more than a year of being out of work I landed a great job as a Marketing Coordinator and I am so grateful. What I am even more grateful of is my gorgeous, loving man that I got together with. Can't believe we've been together a year! Even though is's been a year and being together feel so right and natural the concept of having had a boyfriend for a long time is still new to me.
I am in a good place and the good things that happened in the year behind us proves that life goes up and down and things can change. I sometimes look back on what my life was like about five years ago. My Lymphedema was a fact and I was in the phase where I had to get my head around having been struck by an incurable illness. My soul had suffered great damage from men I wish I had never met, the jobsituation wasn't good either as I did have a job but it was on borrowed time and other things too brought me to the lowest point in my life so far. I am in a different place now. Not only because of the job and the man but living with Lymphedema is much different for me now than it was. It took me over a year to come to terms with the diagnosis but very slowly things got better. I got to know my condition and I learned to work around it and gradually came to realize what I could do and wear instead of grieving over my loss. I guess I have come to accept one of the things I cannot change.
I wonder what this year will bring. Hopefully I will keep the job and the man but life can change so quickly. I hope that now that I have an income I will travel more again and be better at living my life more intensely. I wish you all a happy 2015. Thanks for being part of my blog.

The other day I took some things to a place where a group of people collects clothes and other necessities for refugees inside Syria. I took some clothes, some old compressions stockings, soap, sanitary towels, toothbrushes, razors, etc. I also brought some canned food and rice.

Stay tuned, I am working on a post about long term effects of Lymphedema/getting older with Lymphedema. Who knows when I will get to publish that but hopefully it won't be too long.

8 comments:

  1. Glad to hear from you again and glad that life is so good for you right now! I've been wondering how you were doing and thinking that lymphedema must be a much smaller part of your life and thinking right now since it'd been so long since an update, which is a really GOOD thing.

    Yes, as time goes by it does get better, doesn't it? I'm still tired by it all sometimes - especially during a bandaging phase - but I'm used to the restrictions/potential restrictions now and gradually testing things out to see what's possible. This winter I've been downhill skiing twice, for the first time since lymphedema (my therapist was not at all sure how it would affect me) and am about to go alone to Bali during a hotter season, straight from winter here to summer there. So it won't be the exact same life but in some ways, I'm taking back my life. Which pleases me.

    I also was on a work trip where I had to be outside with my leg wrapped and...there was the chance of rain. I didn't have boots with me. So I went to a store and bought a box of plastic bags. One of them in my shoe and my foot was dry! I was actually almost interested in thinking up new ways to get around the Big L...couldn't have done that even three years ago.

    Bests to you and hope things continue so well.

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  2. Happy belated New Year to you too! Or 'Good Continuation' as the swedes say. Do you say that in Danish too?

    It's great to hear you are in such a positive happy place right now. Long may it last!

    Inspired by you, I've decided to contribute to the online lymphie community too and start a blog. I'll share the link once I'm a bit more confident about it ... and have written something.

    Take care
    Hutch

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    Replies
    1. Hi Hutch, thanks for writing. I am sorry it's been so long. A lot on my plate.. Yay, that's great news that you are starting a blog - go girl! Looking forward to reading it!

      Take care
      Liz

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  3. Hello, been along time since we chatted. I have to share news with you if you haven't already come across this info - google search Dr. Stanley Rockson. He has a great video on "New and Emerging Treatments" for lymphedema. I searched his name and also came across Venestat Horse Chestnut Extract. You can google that as well, but it basically supports vein function, which will help with circulation therefore indirectly helping lymphatic system. My mom started taking two capsules daily, we'll see what happens. Also, we are going to order a supplement product called Plexus. Supposed to be amazing. There are probably other things to share, but I'll leave it at this for now. Hope you're well. Really, check out Dr. Rockson!

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  4. I just found this information as well - by researcher Stanley Rockson - I think it is so promising. https://clinicaltrials.gov/ct2/show/study/NCT02257970

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  5. Hello

    How can I connect with Lymphedema Girl or anybody else on this blog one-on-one???

    I feel so alone and NEED to talk with people about this. People who have lymphedema

    Please. Please reach out.

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    1. Hi Julie,
      I am sad you feel so alone. I know what it is like. You are not alone though, there are thousands if not millions of us out here. I strongly recommend you to go to this link, it is community for Lymphedema and you will find other lymphers to communicate with:
      https://healthunlocked.com/lsn

      Also check out Lymphedemapeople.com - it seems the page is down right now, does anybody know if it has been closed? It was really good, so do check it out!

      Warm regards
      Liz

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    2. I'm sorry you're in a rough place; I've been there too, and it's not fun. For some reason even though the community is much larger than people think the medical websites/support communities are either inactive or only scary. Check out the links Liz has above and also read through the archives here - this blog was one of the biggest helps I found when I was struggling! Still recall the day I stumbled on it - HOPE!! I've downhill skiied a bit and scuba dive and travel to tropical countries...okay, unadventurous ones - all things I at one time thought I wouldn't. This condition is a pain in the arse and learning to live with it can take time - and there are ups and downs - but in time it becomes just one part of life, not all of your life. Best of luck!

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