Sunday, 25 October 2015

As I said...

... things can change so quickly. I lost my love to manic depression. Runs in his family. He has turned against me and wants nothing to do with me. Outlooks are bleak and I don't think he will get help and come back to me. It feels so unreal, absurd and confusing.
The jobsituation has changed too. I still have my job but a new CEO has been brought in and my working conditions and opportunities for the future are now much different. My co-worker is not being nice to me.

Life goes up and down. I really did cherish what I had when I had it. At least I got that one year with my love and I am still thankful that I got that job after all those months without.

It is not all bad news though. In April this year I bought a lovely little allotment on the outskirts of Copenhagen. It is more like a small summerhouse really, with electricity, running water, toilet etc. There is a bedroom and kitchen so many times during the summer I have stayed there for some days. My sanctuary. A place of peace and quiet in an increasingly mad world. As I live in a flat on the 3rd floor it is heavenly to be able to go there and step out on my own lawn and sit with my coffee, listening to the silence and the birds. Being able to wear sandals without worrying about anyone seing the compression stocking and the toecap. I am already looking forward to spring and summer so I can go there again. It is six months away though.

I am sorry it's been so long. I haven't had so much to write about, at least not reg. Lymphedema. My leg is the same, big. Earlier this year I got two new JoviPaks to use at night. They do a good job and my leg is soft when I wake in the morning but it hasn't really made my leg any smaller. Oh well, at least it keeps the tissue from growing hard etc. I had a MLD a few weeks ago and my therapist was impressed, she thought my leg looked and felt very well managed. I am seeing my fitter soon, maybe he has some new ideas reg. nightgarment.

Saturday, 28 February 2015

Happy New Year!

Hi there.

First, have a listen to this beautyful piece of music, that I am listening to a lot these days:

I've been wanting to wish you all a happy new year, guess it's a little late for that now but here goes anyway, I wrote it around new year but never got to publish it.

Happy New Year! We all know that life is mixed and that it can't all be good but I do wish you will all have a year with lots of love, luck and good times. I hope your conditions will behave and not give you too much grief. Newbies; know that by this time next year things will be different and you will be in a better place.

2014 was a big year for me. After more than a year of being out of work I landed a great job as a Marketing Coordinator and I am so grateful. What I am even more grateful of is my gorgeous, loving man that I got together with. Can't believe we've been together a year! Even though is's been a year and being together feel so right and natural the concept of having had a boyfriend for a long time is still new to me.
I am in a good place and the good things that happened in the year behind us proves that life goes up and down and things can change. I sometimes look back on what my life was like about five years ago. My Lymphedema was a fact and I was in the phase where I had to get my head around having been struck by an incurable illness. My soul had suffered great damage from men I wish I had never met, the jobsituation wasn't good either as I did have a job but it was on borrowed time and other things too brought me to the lowest point in my life so far. I am in a different place now. Not only because of the job and the man but living with Lymphedema is much different for me now than it was. It took me over a year to come to terms with the diagnosis but very slowly things got better. I got to know my condition and I learned to work around it and gradually came to realize what I could do and wear instead of grieving over my loss. I guess I have come to accept one of the things I cannot change.
I wonder what this year will bring. Hopefully I will keep the job and the man but life can change so quickly. I hope that now that I have an income I will travel more again and be better at living my life more intensely. I wish you all a happy 2015. Thanks for being part of my blog.

The other day I took some things to a place where a group of people collects clothes and other necessities for refugees inside Syria. I took some clothes, some old compressions stockings, soap, sanitary towels, toothbrushes, razors, etc. I also brought some canned food and rice.

Stay tuned, I am working on a post about long term effects of Lymphedema/getting older with Lymphedema. Who knows when I will get to publish that but hopefully it won't be too long.