Saturday, 22 June 2013

New shoes

The sale is on and I just recieved as much as six pairs of shoes! However, I send two back and ended up with two usable pairs in two different sizes, one size for each foot. They were very reduced and I think they are nice and light for Summer so I got a pair in white and one in blue.

I have been asked by the leader of the lymphedema therapists overhere to be a sort of crash test dummy when new therapists-to-be are doing a training course next week and I said yes. I think the leader, who I know briefly, is going to do a wrapping demo on me and perhaps show the students (who are trained physio therapists) how to do MLD. I will let you know how it goes.

I forgot about this fine song but the other day it popped up in my head. Do have a listen, it is beautyful.

Overhere everything is so green and lush and the most delicious produce is in season. I have made some beautyful rhubarb compote to use in trifles, it is heavenly! Also thinking of making some elderflower vinegar. The smell of elderflower is the smell of Summer...

They are 39 and 40. I think the difference shows less IRL.
No one but myself will notice.

11 comments:

  1. Hi. This is going to be my first summer with lymphedema and I'm a little nervous. Can you give me any advice? I'm worried that I won't be able to wear my stockings. Any strategies for dealing with the warm weather?

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    1. Hi Maria, my tips for Summer would be to wear trousers/pants in a light fabric. I really feel the difference from wearing a heavy pair of jeans vs. some really thin-fabric pants. A long floaty skirt will also provide some air to your leg. Even though it can be real hot I think you should try to wear your stockings every day in order to not make things worse. You can spray your stocking lightly (when you are wearing it) with water from a spray bottle, that gives a wonderful cooling sensation and it also provides more compression.
      Since I was diagnosed the summers have been very different for me. No swimming, sunbathing, sandals etc. Much of this is due to feeling embarrassed and not wanting to expose my leg. You can still do these things though, but take great care to not get cuts if going to the beach and avoid sunburns - the Lymphedema leg have been hiding under the stocking and may be more sensitive than the rest of your skin.
      I wish you a great Summer, you will be fine. Stay cool ;-)
      Liz

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  2. You know what is the best shoe ever? Nike air max... I think it is the combination with the shoes not being totally flat, sport shoe and gives some slight pressure under the ankle region... My foot never looked better since. They come with nice colors and they are in ;) combined with skinny trousers they are just nice!

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    1. Hi there, thanks for the tip! I checked them out and they have some really cool styles! They look comfy too! I bet they look good with skinny trousers, I wish I could wear those.
      Take care.

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  3. Love the shoes! When I was a youngster, my parents had rhubarb growing in the back yard. I used to pluck a stalk and dip it in sugar and munch away! I am definitely going to make something with stawberries and rhubarb this weekend, now that you mention it. JulieDawn on the lymph note forum has posted about her consultation with Dr.Chang in Texas, have you seen her post? I hope that I can get surgery in the future. I am going to wait until the pharmaceutical that speeds lymph node growth is widely used. Happy summer!

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    1. Hi Sheryl, my parents too had rhubarb in their yard when I was a child. Now I dream of an alotment or something where I could grown my own produce and rhubarb would be the first thing I would plant! I also got my hands on some gooseberries a couple of weeks ago, made a beautyful compote!
      Thanks for the tip about that post! My Lymphedema is Primary and I feel it would be too risky with a transplant but in the future I'd like to look into the LVA. Still, who knows if my vessels are any good and all that. It is amazing that a drug can speed up lymph node! Happy summer to you too!

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  4. Yes, Nike has some lovely, fun shoes - very comfy and bright colors. I wear a lot of long skirts since I was sensitive to the heat even before lymphedema. I'm lucky enough that my one leg isn't that different and so I also wear summer dresses - have been asked once or twice what's up with the leg but no real problem, if it makes other people curious that's their problem, not mine.
    Otherwise, just trying to keep cool, not so easy in Japan where it's 35 degrees (96 degrees) every day. (FYI I asked one of the therapists about using your method with the spray bottle and he didn't think it was a good idea, thought it was too easy to have the chance of bacteria growing. Though that may just have been Japanese pessimism talking - how many years have you been doing that? It does sound comfortable

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    1. Hi Elaine,
      35 degress - OMG!! Overhere it is cooling down, thankfully, and we are heading towards autumn now.
      I think your therapist is being overly overly cautious reg. the spraybottle. Then we couldn't shower either, could we? Afterall it is just water. We sweat too, making the stocking moist. I think I've been doing it since the start four years ago. It is heavenly in the heat, have you tried? I keep my bottle in the fridge which makes the spray even more lovely :-)
      I hope you are well.
      Liz

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  5. Still hot here, getting pretty sick of it. I have no idea when the heat will end - 33-34 everyday at least for the next week and probably longer! I think Tokyo is the hottest place in the world except perhaps for places in the Mideast, sigh.

    I went swimming in the ocean for the first time since I had lymphedema a week ago and have discovered something nice - kayak shoes! They're very light, fitted shoes used for kayaking, but they completely enclose your feet to the ankles. I was wearing an old stocking and ankle sock under it, so none of my foot was bare under the shoe (perhaps paranoid) but it actually wasn't bad and I enjoyed the water.


    I like the idea of your spray bottle - does sound very comfy - not sure what the therapist was visualizing and really, if you're going to wash it that night what does it matter?

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    1. Hi Elaine, that's great with the kayak shoes! I hope it is cooler now, it sure is here.
      Liz

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  6. Hey Liz, cooled down to 28 here (hahahaha) which is hot for here in October. Sigh.
    FYI I just got back from a trip to Bali where I swam in the ocean, walked loads and scuba-dived, just like pre-lymphedema. Think I may have learned some good things that might help other people and would like to share - have you ever thought of having people do a guest post? Unfortunately I left my kayak shoes in a guest house...need to buy others...

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