Wednesday, 27 June 2012

Working around it

In my last post I said that I had somewhat accepted having Lymphedema and the routines I have now is for life. But there is more to it than that. I guess I relatively quickly accepted it within myself, although I still tried to cure myself, but when it comes to others it is a different matter. I still feel ashamed and I do everything I can to hide my foot and leg. It sometimes feels a bit surreal as it is not like I have committed a crime or anything and I shouldn't really feel ashamed but I do. However, I feel that I am getting better at working around it.
Over dinner at the first night at the patient weekend earlier this year I talked to Sophisticated Tina and I told her I was ashamed. I think she was telling me that in the Summer she would go swimming in the sea with her little daughter, wearing an old stocking and I said I could never do that. She asked me how long I had had Lymphedema and when I said "almost three years" she said "oh, you are not there yet", meaning that she was way ahead in the process of accepting it/not fussing so much and that I would get there too one day. Her words comforted me but I still find it hard to believe I will ever get to show my stocking. Who knows... If only people weren't so judgemental and if only I wasn't such a sensitive wuss ;-)

On Friday I went to the personal shopper again, stay tuned for more about this. It wasn't as mindblowing as the first time but I did get a couple of nice things of which I have to decide what to return and what to keep. Definitely one keeper, a beautyful long dress that can be dressed up or dressed down according to the occasion.

I have decided to wear the knee-high everyday at work this week, over the thigh-high, to see if it makes any difference. I doubt it as it is fairly loose, but we will see. I am going to see the fitter next month so can discuss matters with him and perhaps order a better one.

I thought I'd share that the sale is on at where they sell very wide fit shoes.

Sorry about the koala bear, he's got nothing to do in this post but when when looking for a suitable picture in my archive I stumbled upon him and thought he was so cute. He is from this post about my Top 2 Australian songs.

Thursday, 14 June 2012

How far will we go?

In the beginning of my Lymphedema life I was very keen to experiment with various things to find a Lymphedema cure. I felt certain that I could cure myself and make it go away. I googled high and low and I tried many things. Wheatgrass juice, Epsom salt baths, Chlorella, green clay, herbs, reflexology etc. Gradually I stopped and a little while ago I suddenly realized it seemed I had given up and accepted that this is what it's going to be like for the rest of my life. I guess part of it is true. I guess I have somehow accepted that this is my life now. However, even though I doubt a Lymphedema cure as such exists, I do think it is possible to make Lymphedema a whole lot better and control it. I know two ladies who does. One of them, K, claims to have healed herself completely by cleansing her body and mind. I don't feel certain it was really Lymphedema she had though. The other lady, W, keeps her Lymphedema at bay so much so she can wear skinny jeans and fancy boots, even more than Sophisticated Tina. She does it by eating a very restricted diet. She does wear a compression stocking though. K doesn't. This leads me to a dilemma, something that I have been wanting to write about for a long time: How far will we go? How much are we willing to "pay" for that slim leg?
Personally I don't think it would be worth it for me giving up all those lovely foods that I cherish, to have that slim leg if I would have to wear the compression stocking anyway. But what if I could get rid of the stocking? I don't know. I am thinking there has got to be a balance. What's the point having a slim leg if obtaining it makes me miserable? I guess we have all got to find our balance. What are your thoughts on this?

Comments are ticking in after I announced my Give-away and I appreciate it. Keep 'em coming :-) Your comments mean a lot to me and they are for everyone to benefit from. I feel that with this blog I shout "hello - is anybody there?" into some dark, unknown Lymphedema emptyness and so when you guys write comments to my posts I feel I'm not alone with this akward condition. Thank you.

PS: Bad idea looking for naugthy cake pictures half hour before lunch :-/

Monday, 4 June 2012

My first give-away!

To try and get more of you sweet readers to place comments to my posts I have decided to have a little give-away. I have been debating with myself what the prize should be. Something universal, preferably something related to Lymphedema. I decided on the book "Overcoming the emotional challenges of Lymphedema". I haven't read it myself, but I'd like to. I find that dealing with the physical stuff is more than enough but the emotional mess that comes with getting Lymphedema is perhaps even more dificult.

Together with LymphedemaProducts I am giving away three copies of this book. From all the comments placed with any post here on the blog from today till July 15 this year I will cover my eyes and pick three, the winners all get one book, send anywhere in the world (except the usual airbases etc.).

It is dead simple to place a comment, click here for a miniguide if in doubt. You can place as many comments as you like to enhance your chances as long as they are Lymphedema related.
You don't have to write your address, just some kind of name, I will ask you to send me your address if you win.

The book is also for purchase at for $34.95.

Start commenting!  :-)

From the book:
Overcoming the Emotional Challenges of Lymphedema is designed to help: 
(1) understand the emotional challenges of lymphedema; 
(2) overcome these challenges and avoid common pitfalls; 
(3) recognize problems and know where to go for help; 
(4) communicate effectively with family, friends, coworkers, and health care professionals; 
(5) set and prioritize goals; 
(6) identify stages in the process of changing; 
(7) choose specific actions for reaching goals; 
(8) monitor progress and maintain gains; 
(9) learn the ten signs of good coping and six warning signs of ineffective coping. 

This book is a comprehensive guide for: 
(a) people with lymphedema; 
(b) friends and family; 
(c) parents of children with lymphedema; 
(d) health care professionals; 
(e) psychotherapists.