The weekend was a mix of speaks (a German Lymphedema specialist, a therapist, Lymphedema doctors, a fitter, a stylist etc.), workshops, a showing of a new DVD about Lymphedema the association has created, and various distributors showing off their products (garments, shoes, pumps etc.). One of them was this product (for now I link instead of writing the name). Apparently it can be an alternative to a Lymphedema pump. A Lymphedema therapist spoke about the product, she had had good results with it. Also this product was available to see and learn about. I'd like to investigate more on both of them once I get time.
The workshops was a chance to try or hear about Mensendieck system, acupuncture and water gymnastics. I had signed up for acupuncture, very interesting. The acupuncturist said that Lymphedema is related to the spleen meridian. I thought that was particularly interesting as the Qi Gong training I do also deals with meridians and I'm wondering if there are exercises I can do to stimulate the spleen. I will ask my trainer. I tried acupuncture 14 times when Lymphedema first started, nothing happened. However, the clinic represented at the weekend had good results, they specialised in Lymphedema. Still, now that I know more about Lymphedema I am terrified of triggering another outbreak, so I won't try again.
I met some really nice people. Most of the people there were probably 60+ but there were also some younger than that. I spoke to a 37-year old woman with Primary Lymphedema in both legs. I could relate to her, and I'm glad I got to talk to her. Her legs were huge. I also hung out with a very stylish woman that I had seen two years ago but didn't speak to at that time. When I saw her back then I thought she was around 30 or so but when we sat at the same table for dinner the first night this weekend she mentioned her 25-years wedding aniversary last year. "Huh?" – I thought. It turned out she was 48! She looked so good and she really knew how to dress around her condition and make the most of her options. She had secondary Lymphedema in one leg. She was indeed an inspiration, more about her in a separate post soon.
There were lots of socialising at breaks, mealtimes and at a walkingtour in the beautful surroundings. The hotel was really nice, great pool and most important – a pancake station at the breakfast buffet ;-)
I am glad I went. I can strongly recommend other Lymphedema sufferes to join a patient association and attend their meetings etc., if possible.
Coming up: At the fitter, swimming and sophisticated Tina.