Wednesday, 11 January 2012

Sensitivity

My new Jovipak nightgarment has so far not been the success I was hoping it would. It is still early days though. The last two nights I have had to take it off during the night as it was causing pain on my sensitive spots. I have had the same problem many times when wrapping even though I try to protect the sensitive bones with little rings of foam around it.
The garment hasn't produced any results as to less swelling either. Last night I wrapped three rolls of Comprilan short stretch bandages over it, to mid thight, but as I had to take it off and I could not be asked to turn the lights on and check my leg I don't know if it was any good. I might try and get some better protectors soon. I feel discouraged as I had high hopes for this type of garment, so easy to slip on and go to sleep. Slip and sleep. Not.

4 comments:

  1. I just found your blog while searching for an image of the horrific night time apparatus my physical therapist proposed I wear every night for the rest of my life. We have a similar perspective, I think, although you appear to be a lot stronger than I am. I am a big wimp. :)

    I threw in the towel today after two weeks of decompression wrapping of my left leg. I have lymphedema secondary to MS immobility. After fourteen days of increasingly severe pain in my leg due to ramped up MS symptoms, I opted out of the wrapping. The physical therapists are freaking and have waved all sorts of dire warnings in front of me, but I am the only one who knows how much I can tolerate, and I hit a wall last night.

    I am looking forward to reading more about your experiences. I write three blogs and have written posts about the lymphedema here: http://www.nourishourselves.blogspot.com/2012/01/its-wrap.html and here: http://www.msrenegade.com/2012/01/seven-days-into-lymphedema-therapy-i.html.

    I would love to hear any input you have.

    Cheers,
    Marie :)

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  2. I completely understand your frustration. I've had LE in my right leg for almost 17 years and have found that wrapping is the only thing that helps me regulate the swelling. Years ago, I got a Reid sleeve, which is very bulky and difficult to sleep in, but it does almost nothing, compared to wrapping. I'll use it in a pinch, but I figure if I'm going to suffer with being uncomfortable while I sleep, I'd rather take the extra time to wrap.

    I have bony feet, too. If I wrap too tight around my feet, I will always wake up with my foot sound asleep and painfully prickly. It's a matter of figuring out the pressure that works for you; I use padding on the top of my foot and around my ankles and *still* pull the bandages less tight than everywhere else.

    Hang in there.

    Elizabeth

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  3. Hello Marie.
    Thank your for writing. I am sad to hear that you have to struggle with not only MS but also Lymphedema. Two weeks is a long time to be wrapped, let alone the four weeks you were supposed to wear them, I can understand you threw in the towel. You are right, we know our bodies best despite doctors and therapists wanting the best for us. Was the bandaging with a compression stocking in mind? My therapist wraps me apr. ten days in a row once a year before I am measured for a new compression stocking. Perhaps you could gradually get the swelling down by doing the same thing only two weeks twice a year, wearing a compression stocking the rest of the time, what do you think? I think a compression stocking is the most important on a daily basis, you want to hold things in. Don't give up on wrapping or Lymphedema, you will learn how to manage this and hopefully your therapists will understand what you can and can not do and take it from there. I am looking forward to check out your blogs more.
    Warm regards
    Liz

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  4. Hi Elizabeth.
    Thanks for your input, much appreciated. I fear that proper wrapping is the only thing for me too as wrapping over the garment hasn't helped so far. Such a hassle to do a proper wrap though. I will not give up on the garment just yet.
    About sensitivity, you are right, it is a matter of figuring out how much pressure I can take, and it is about placing the padding very precisely. Hit or miss. Hopefully I will get it some day.
    Thanks for the "hang in there" :-)
    Liz

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