Wednesday, 29 June 2011

Let the search begin

This one, perhaps?
I have been invited to a wedding. It is not until September, but to not leave things to the last minute I have already started to look for a dress. September is here before we know it too. I do have a beautiful, long prom dress in the back of my wardrobe, but it is at least ten years old, worn and probably too short to hide the lymphedemaleg.
I am, in a way, looking forward to dress up big time, if the dress is beautiful, fits well and I feel comfortable. It is so important to feel comfortable. Can't count the times I have worn uncomfortable shoes, had pantyhoses falling down or causing spare tires, worried about the knickers showing etc, etc. I really can't be bothered with all that anymore. It's not fun. 

When I hear the word bothered, pronounced with Brit accent, I often think of this extremely funny video with Tony B and Catherine T.
Anyway, so far I have found a couple of dresses that I am going to have a closer look at, all online, from Denmark or abroad. The web sure is handy, one can get anything! At the moment I am waiting for some vanillapods I ordered from vanillamart.com
I will have to get some shoes for the wedding too. I wonder if I can get my foot into a pair of heels. I will probably have to buy two pairs in different sizes as dressy shoes is no good for putting an insole into.


Update: Check out my tips on shopping for Lymphedema wear.

Monday, 27 June 2011

Pumping and wrapping

For the good part of two weeks I've been pumping and wrapping almost every night and last weekend even pumping in the morning upon getting up. The measurements don't show any significant difference but the tissue becomes soft and the lymphfluid more sort of movable. I notice that when I (no stocking on) lie on my back in my bed with my knees pulled up to my chest, my feet are now next to each other instead of like before when the lymphedemafoot due to fluid was much higher up than the other. In other words; I can bend the lymphedemaleg more now.
 
I am getting better at wrapping, but I need many rolls of bandage. I have nine rolls of shortstretch bandage and that's what my Physical Therapist uses to wrap me, but I find it hard to get the bandage as compact as she can, with only nine rolls. Will ask her for some tips next time. Might have to get some more, was thinking of getting another set anyway.

 
I have already received the LymphaPress that I am to test, that was quick. Bit of a hassle to get the big box home on the bicycle. Unfortunately one little part was missing, but I will get that tomorrow. The trial period is only just over a week, so I will have to return in next Monday. Hopefully I can pump every night starting tomorrow and get an impression of it. I'm excited to try it. 

The pumping and wrapping has also meant that I can now wear my beloved old trainers/walkingshoes again. But only just, and I take it off under my desk at work.
 
The trick with spraying water on the compression stocking with a atomizer is not bad at all, it cools the leg, which is much needed on a day like today, it is very hot overhere at the moment.

Tuesday, 21 June 2011

In line for a LymphaPress

Last week I phoned the company that sells the LymphaPress compressionpump overhere. I spoke with a real nice lady who put me on a waiting list for a pump to test. It will be interesting to try it once I get it. We talked a little about the pump I have now (Pulse Press Multi 12) and she said that it works by inflating from the foot upwards, but only the first time – from then on it inflates all over at the same time, which I don't think makes sense when the idea is to push the fluid up and away from the leg. I do think it works somewhat afterall, especially after I brought it to the physiotherapist who adjusted the settings to 30 seconds of pumping and 10 seconds pause, but it doesn't seem to bring the swelling down. The LymphaPress inflates from the foot upwards every time.

It turns out that the company I got mine from does not, as I had been told by the hospital who applied for it for me, have the competitive tendering on compression pumps in my area, they are just "really good friends", whatever that means – with the hospital, which is why I got this one and not ie a LymphaPress.

I'd be very happy for comments if you have experience with the LymphaPress. Thank you. All readers can see comments and benefit from them.

Friday, 10 June 2011

On having flaws and handicaps as a younger person

There are many who have something. Also younger people. Among people I know, know of, or have known or known of I can list the following, all in their 30ties or early 40ties:

Sleep apnea. Must sleep with a mask that helps with breathing.
Hearing aid. (four people)
Psoriasis in the face and most of the body. (two in face+body, three body)
Marks/scars in the face and neck after removal of birthmarks.
Bad eye.

• Diabetes
Cerebral Palsy, suddenly onset in the 30ties.
Deformed and missing fingers and toes.

• Pacemaker
• Fibromyalgia
• Epilepsia as result of an injury
• Amputated finger
• Bad eyesight, going blind
 
In that light my swollen leg and the need for compression stocking is "just" my thing. Like so many others have "a thing". I don't think differently about these people because of their "things".
I don't take comfort knowing that someone is worse off than me, but I do take a little comfort that mine is not worse than it is. It is bad enough though, but maybe it helps a little to see it in light of the fact that it is not so unusual to have something. And I can even hide mine.

After my Lymphedema started I have become less judgemental of people who act or look more than a little different. Not that I was a horrible, judgdemental person before.
It's not always because someone is crazy that he or she behaves a little different, the person may have had a brain haemorrhage for example, and one is not necessarily fat because he or she is lazy and can't get his/her act together and lose weight, but because of an addiction beyond control or a disease that the person is not to blame for. And what if one was to blame? Nobody deserves to be sick.