Wednesday, 28 December 2011


After weeks of waiting, my Jovipak slip-on nightgarment finally arrived the day before Christmas. It has been allright so far, not too tight – actually not tight at all – not too hot and not too stiff. Much less stiff than bandages. It's a little dificult to put on but I guess I will find my routines eventually. I haven't noticed any difference yet but I've only used it a couple of times as I have been away at my parents over Christmas where I didn't bring it. It is quite big and takes up a lot of room. I'm thinking about going on a trip next spring and I am wondering if it will fit in my backpack.
The garment supposively works by softening and massaging the tissue so the compression stocking can do its job more effeciently, providing compression and leading the now mobile fluid away. I have heard good things about the Jovipak so I am excited about getting started properly. As sad as that sounds – looking forward to sleep with a ugly, very padded boot. I guess you know what I mean – I am looking forward to my leg getting better.
It comes with an extra sort of stocking to put on top of the boot itself to create more pressure. I might try that soon.

It's quite big.

Tuesday, 20 December 2011

Homemade Christmas present...

... for my six-year old, dogloving niece. Good fun for Auntie selecting the dogs and naming them...

Sunday, 18 December 2011

Style Consultation #2

First, sorry about the really lousy picutures of myself. I took them with selftimer and they are indeed not very good, even having photoshopped them. Anyway, I hope you can still see something.
I got two pairs of trousers. One grey, one black, both by Principle (Debenhams). They are both very widelegged, especially the blacks. I loooove the thin leather belt on the grey ones. They are very well priced, only 43USD/28GBP and 63USD/41GBP, which I think is pretty good, especially the grey ones, they are quite stylish, good material and well made. I also got three tops, two cardigans and a belt. And the boots of course. The tops, trousers and cardis can all mix and match, very practical.

The stylist wanted me to tuck the trousers into the boots, just loosely. Something in me finds it strange to do that with dressy trousers and streetwear boots, but the more I think about it and look at the pictures, the more I m getting used to the idea. If the boots are tied loosely there is no difference to see from the good leg to the bad.

She made a point of emphasising my waist with short cardigans and sleeves pulled up to create a horizontal line where my figure is slimmest. That makes sense when having to wear baggy trousers.

Short and tight green cardi from Mango.

Black trousers from Debenhams. Zip in the side
and waistband acting as a belt.

My favourite: Dark grey trousers from Debenhams.
Comes with thin leather belt.

My other favourite: The super cool dark-orange belt (Pieces),
I think it goes really well with the creme top and jeans.

To come: My notes on the tips I got from the stylist.

Finally, I want to share this beautyful Christmas song with you, how can one not get in the spirit with this classic, performed by the legend? Here in Copenhagen we had snow today, yay!

Thursday, 15 December 2011

Style consultation #1

Yesterday was my big day with the Style Consult. It went well and I've got lots to show you come weekend when I can take pictures in daylight. Till then, these are the boots I got. Don't know how I feel about them yet, but I bet you can imagine my joy when I learnt I could get my big foot in them. They are from Clarks and their name is Active Air Jyro Hi.

Monday, 12 December 2011

Under the same moon

Last night I was laying in my bed thinking. I was thinking of how many people from how many different countries is reading the blog. From the "engineroom" I can see that by now 87 countries from all parts of the world are or have been represented. That's a lot of countries. Lot of people. What if we could all meet...
We live in different worlds and have different lives but one thing connects us. Lymphedema. Even though we are far apart I somehow feel a connection. I imagined all of us going outside at the exact same time, looking up at the moon. We would be looking at the same moon and we would know that hundreds of others lymphers would be looking too, feeling comforted that we are not alone.

Friday, 9 December 2011

Still here

I'm still here, didn't realize I had not posted anything since Nov 20. Since my big wrapping session at the therapist finished my leg has gone up. I pump and wrap most nights now which helps a little but it's difficult to get the bandages as compact as the therapist can, especially when I have to be very careful with my sensitive spots. Many a night I have had to get up in the middle of the night and take the whole thing off.

I have ordered the second new stocking from the fitter. I have been approved for two stockings + toecaps per year which I find it hard to get by on, but I will have to, as I haven't got the apr. 450$ a taylormade stocking costs. I am waiting for the Jovipak nightgarment to arrive. It is being made in America and it takes a while to make it and get it here. Can't be that long now, I think I got the approval and ordered it about two weeks ago now.

30 people has voted in the dietpoll so far. I really appreciate you guys wanting to contribute. Just over half says that salt makes the swelling worse, and I guess that doesn't come as a surprise as one often hears that salt is bad for lymphers as it it binds the fluid. Alcohol comes in second but what strikes me is how relatively many indicates dairyproducts as the bad guy. Interesting.